Sunday, January 11, 2009

Parent Resources

Moma’s Starter Set

Below are websites and phone numbers that I have found in my quest for answers and assistance on our journey with Rosemary. These sites are geared toward providing information, education and connection for individuals and their families affected by children with heart disease.

My list below is a good start, but try to Google search your local churches, Kawanis Clubs, Lions Clubs, and Child Care Councils to see if they know of any ways to offer assistance or have any other resources to offer you--possibly names of other foundations, individuals who can help or people in similar situations.  This is how I came across all of these individuals and organizations.  I'm hoping that I've saved you some of luck!

If you have a site to share, please email me and I’ll post it.
This page will be updated on a weekly basis.


Little Hearts
A support system for parents and families of children with CHD's.

Project Sunshine is a nonprofit organization that provides free educational, recreational, and social programs to children facing medical challenges and their families.

Heart Support of America
President, Laura Perry
Offering grants to assist with transportation, lodging, and financial support.
CarePages websites are free patient blogs that connect friends and family during a health challenge.  They also offer a number of forums.

Baby Hearts Press

Heart of Hearts
New York-Presbyterian
The University Hospital of Columbia and Cornell

Hope For HLHS

Gloria’s Place of Hope

American Heart Association

Deborah Heart & Lung Center
Assistance and information related to surgical procedures

TRANSPORTATION.  (Google Free Air Line) 

Flying Wheels Travel
Assistance in paying for transportation to surgical procedures

Will fly patients.


Hill-Burton Hospital Free Care
Financial Assistance toward medical bills, not doctor fees.

Last Updated 06/13/09